The Electrical Physiology test has been postponed until Monday. Bing gets to come stay at the condo with us for the weekend as long as he is never alone and refrains from anything fun. Monday morning at 6:30 we head back to University of Washington Medical Center for Bing's test which takes a minimum of 3 hours and could go as long as 6 hours. This will answer a lot of questions such as: will they replace his pulmonic valve, will he need a pacemaker, will he need a defibrillator, how much longer will we need to be here etc...
The good news is that they feel he is stable enough to leave the hospital for several days and that this is less of an emergency than they originally let on. Sure, it needs to be dealt with, but they have the luxury of taking their time and testing him to be sure they are doing what is best and what is needed.
We continue to be grateful for everyone's prayers and support.
We love you all!
Friday, June 26, 2009
No Emergency Yet
So... they are taking their time and doing lots of tests. All of the tests, although time consuming, make certain that they don't perform a surgery that isn't needed. After meeting with three doctors (one of which saw Bing the last time he was flown into Seattle), we got some fuzzy answers and a plan for tomorrow. His heart is no worse than the last time he was seen. Since his condition hasn't progressed, they are hesitant to do a valve replacement, as it is a major surgery and not necessarily the answer to our problems.
They will be doing a test tomorrow where they insert some "wiring" in through his groin, up the veins, and to his heart. This allows them to deliver shocks and monitor how his heart is wired. Because he has had corrective surgery (at 14 months old) he has some scars in his heart, these scars can act as a short circuit, where the "electricity" goes round and round the scar and doesn't make it to it's destination. During this procedure, if they find such issues, they can make, what is essentially another scar, to close the circuit so that the "electricity" is routed in the right direction.
If this goes well, and they determine that Bing's issues stem from "electrical" problems and not from his valve, they will not replace it. He may or may not be getting a pacemaker and/or a defibrillator.
This test will answer a lot of questions as far as how long we will be here, and what they will ultimately do to Bing. If he doesn't have to have his valve replaced we may be out of the hospital as soon as Monday.
Bing's former Aunt has an amazing apartment overlooking downtown and the Space Needle and has made it available to all of us, and has agreed to accommodate me when everyone else has to return to work. It is ten minutes from the hospital and she even has a cute little porto-crib so I didn't have to bring my pack-n-play.
For all of you Medical people that read this... don't judge me for my terminology and limited understanding of all of this. I took notes and everything but I am in a pitch black room with Maddox relating all of this from memory. Feels like college!
I know and believe that God is bigger than all of this, he has a plan that is better than anything we could have dreamed. I believe that this is a blessing from which Bing will enjoy a better quality, and much longer life. We truly appreciate all of the love, support, and prayers that have been extended to us. Thank you for being available, even if I haven't called you back.
They will be doing a test tomorrow where they insert some "wiring" in through his groin, up the veins, and to his heart. This allows them to deliver shocks and monitor how his heart is wired. Because he has had corrective surgery (at 14 months old) he has some scars in his heart, these scars can act as a short circuit, where the "electricity" goes round and round the scar and doesn't make it to it's destination. During this procedure, if they find such issues, they can make, what is essentially another scar, to close the circuit so that the "electricity" is routed in the right direction.
If this goes well, and they determine that Bing's issues stem from "electrical" problems and not from his valve, they will not replace it. He may or may not be getting a pacemaker and/or a defibrillator.
This test will answer a lot of questions as far as how long we will be here, and what they will ultimately do to Bing. If he doesn't have to have his valve replaced we may be out of the hospital as soon as Monday.
Bing's former Aunt has an amazing apartment overlooking downtown and the Space Needle and has made it available to all of us, and has agreed to accommodate me when everyone else has to return to work. It is ten minutes from the hospital and she even has a cute little porto-crib so I didn't have to bring my pack-n-play.
For all of you Medical people that read this... don't judge me for my terminology and limited understanding of all of this. I took notes and everything but I am in a pitch black room with Maddox relating all of this from memory. Feels like college!
I know and believe that God is bigger than all of this, he has a plan that is better than anything we could have dreamed. I believe that this is a blessing from which Bing will enjoy a better quality, and much longer life. We truly appreciate all of the love, support, and prayers that have been extended to us. Thank you for being available, even if I haven't called you back.
Wednesday, June 24, 2009
Please Pray
After collapsing into convulsions and a trip to the ER, Bing was flown to Seattle to undergo emergency heart surgery. Maddox and I are still in Billings waiting to find a flight out to be with him. I'll try to keep you posted either here or through Addie's blog. Please pray for Bing's safety and recovery, and my wild emotions.
Tuesday, June 16, 2009
Mobile Maddox
Maddox was playing nicely in the living room so I went to the kitchen, ten feet away, to get a cup of coffee. When I turned back around, Maddox had dumped my purse, and all of the Milk duds that were in it. He smacked his lips a couple of times, indicating that the dud in his mouth was making him salivate even more than usual. I felt around in his mouth for the dud and found nothing, but he continued to work his mouth and drool sweet caramel. I finally pried what looked like a caramel retainer from the roof of his mouth.
About half an hour later I found Maddox laying on his back with his feet propped up, looking at a magazine! Unfortunately I didn't get a picture, but Maddox sure showed me a sassy side today.
About half an hour later I found Maddox laying on his back with his feet propped up, looking at a magazine! Unfortunately I didn't get a picture, but Maddox sure showed me a sassy side today.
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